Saturday, November 20, 2010

Day Two - Post Surgery

Do you think the girl has enough to do?
She quickly filled her jewelry box up with girlie goodies. The gloss is banana flavor and, yes, I do see her licking her lips often. I caught her eating her chapstick earlier and had to threaten to take that away.

A diva yesterday and a princess today.

This is a really good picture one of her friends at school drew for her. Can you tell which one is Chaning? Too sweet.

This is how our day started (might I say post opening her gift of the day from me). Head is placed neatly under the pillow with sounds that resemble a growl coming out of her mouth. This is where the phone call bargaining came into play. One meltdown in four days....I would have already have four a day and more than likely jumped ship.


This girl is on the run and I mean that literally. I have to run with her food/med IV pole just so she won't get too far ahead and rip her PIC line out. She woke up crying for food and I thought today was going to be really, really rough. The ONLY person she wanted to talk to was Fossiter (aka Foster). Of course, Foster was in the pool training and wouldn't be out for two more hours. Just the promise of him calling her made her smile and forget her hunger. The "food" through her IV they are giving her seems to have started doing its job this afternoon because she has not mentioned food again. They said it would take until today for this to happen or we would be changing her "food" out for a different brand. Thank the Lord it kicked in because it is hard to watch your baby cry.


We quickly decided to take off to the playroom around 9:30 this morning and she stayed until they closed it down at 11:30. She then decided we needed to take a trip down to the gift shop which seems like ten miles away with her and an IV pole in tow but she did wonderful. She wanted to purchase her sister and brother some silly bands. I think she looked at every single item they had. It was a fieldtrip indeed with the usual bathroom stops included. We returned to our room "briefly" to find a balloon and package from cousin Megan. Chaning loved her jewelry box and lip gloss. She quickly filled that box up and started applying her gloss immediately. Some of the nurses have accused her of being a little/lot spoiled. I would say the later is about true. She decided we needed to return to the playroom around 3:30 and we shut the place down AGAIN. She did not want to leave and I can bet that's where we will be hanging out again tomorrow. We ended our day with another ten mile walk to get momma a Starbucks decaf coffee. The local coffee room doesn't seem to be decaf friendly.
Needless to say, we are off our pain meds completely and only get them upon request. She slept really well last night and hope we repeat the same tonight. I lost my permanent spot in the bed to a monkey. I was so relieved but a tiny bit jilted.

Friday, November 19, 2010

Countdown Begins - Day One - Post-Op
Check out my Diva nails. Gotta keep those two fingers nail less for they serve as my pappy.
Poppy sent me a "TV" (dvd player) and it's perfect to try my nails out on.
I have a wrapped present to open each day but somehow my counter is a little off and I've scored three gifts today. Good thing they halfed my morphine.


Gift #3 of the day.

Playing a little Phrase 10 while hanging out in the playroom.

Still smiling
I think this was a little sleep playing.

Stating her case for why she should open gift #3 in one day.

And, of course, she won.
Today has been a so-so day. The consensus of the nurses on the floor is AMAZING. Some cannot believe that she just had surgery yesterday. She has been a little Diva today and full of smiles one moment and then a little fussy the next. They halfed her morphine, which is great and hopefully tomorrow she will come off of it all together. She has had a couple of good naps today, which have well been needed. We ventured out a couple of times but haven't gone terribly far. Hopefully, tomorrow we can go to the first floor and walk around a little more. She has complained a couple of times about being hungry so we are monitoring her until tomorrow to see if they need to change the IV to something a little more full feeling.
She has really enjoyed her DVD player today and thankfully I brought a pair of ear phones for her to plug in. Today counts as Day 1 behind us. Bring on Day 2. We miss our Daddy today. He headed back to AL to be with the other littles. We cannot wait to all be back together at home.


Thursday, November 18, 2010

Day ZERO!

Tim brought his sweetie some balloons when she woke up from surgery.
She loves her cards and her one-a-day gifts. She opened her princess slippers tonight and can only wear one due to the monitor on the other foot but she is wearing it like Cinderella's glass slipper.

Not sure which one was receiving the morphine drip.


This is my little princess after about four hours of sleep and preparing to be taken off to surgery. Still smiling.

Everything is good so far. We were told from medical history that this was probably Chaning's sixth medical procedure in her four years, first in the USA. We were also told that she should be DONE with surgeries and can now start the rest of her life without hospitals, doctors and daily rituals that are not the norm for a child her age. I cannot say enough good about Cincinnati Children's Hospital. We have not met one person that has not shown compassion and love for the kids that come through and for what the contribute. Top Notch Facility!! Now, ask me how I feel about these four walls that we are sitting in come a week or so from now and I'm sure I might be a tad bit fussy. We are going to get such much needed sleep tonight, we hope.



Update on Chaning and Fundraiser for Connie

Chaning is still in surgery and they have called and said they have started her scar revision. Shouldn't be long. I will update soon.

Please jump over and support Connie's giveaway. You could also win a $500 Wal-Mart gift card that you would receive before Black Friday!!!!


http://k6comehome.blogspot.com/2010/11/gift-card-fundraisergiveaway.html

Wednesday, November 17, 2010

Day 1 - Admit/ PIC Line and Gastro Tube

Daddy and Chaning about to take off to the playroom.
Not to worry, that is orange popsicle on her chin.

My girl still tries to smile for the camera.


This establishment has all kind of cool toys.

You have stuck me in the arm, plunged a tube down to my stomach but I still can play a mean game of pool.
Chaning was so excited to be our bellgirl when we got to the hotel.

The meal of choice. My girl chose "Famous Dave's" as her last big meal before "S" day. Ribs, corn on the cob and an ice cream sundae was consumed by this little one.

We all made it safely to Ohio but it was not without hiccups. The rain that we experienced on Monday in AL plus 30 mile an hour winds and a 20 degree difference in temperature followed us all the way up to Ohio. Tim did a great job of driving us but not stopping for lunch or getting out to stretch much at all really took a toll on this chick.
We all had to wake up around 5:45 a.m. EST, we lost an hour (4:45 our time), to get to the hospital. We were immediately escorted to our private room and then the fun began. We were really worried about the PIC line capability due to Chaning's lack of big veins but God answered our prayers and they were able to get it in on the first try, successfully. We then returned to her room so they could insert the tubing down her nose into her stomach. We are still reaping the effect from that procedure. She is doing good and resting well. We are first up for surgery in the morning and that should be begin around 7:45 a.m. EST. Our prayers are that our little girl have an uneventful but successful surgery and that this is her last surgery. Chaning will not be able to have ANYTHING by mouth for the next 7 to 10 days. This is going to be hard on both her and myself. She is already wanting to go home. I will update our website and facebook as I can tomorrow. We have a huge, palacious loveseat-sized pull out chair calling our name to sleep in tonight. It could always be worse. See Ya!!!




 

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